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One year post diagnosis.

User
Posted 19 Apr 2023 at 20:41

Hi Kerm63, thank you so much for the kind feedback and good luck on your progress through this disease.  I do hope your bone scan is clear when you get the results. I have my fingers crossed for that.  Your numbers are similar to mine but as you can see from my response to Maud there is no universal repsonse deadening on numbers.  Mike and I were very similar and he had a better response than me.  I am hoping this is the case for you David.  Sending positive vibes. I am glad you have started on a treatment pathway already and this will give you the best way forward I think.  

Again thank you for your response and good luck with things. If I can be of any help please feel free to drop me a message.  So sorry you are in this silly club! 

Best wishes

Michael 

User
Posted 20 Apr 2023 at 08:40
Wise words Michael, your honesty and pragmatism does you proud. All the very best wishes for your continued treatment path and I look forward to your year 2 update.

User
Posted 20 Apr 2023 at 09:24

Hi Jasper, thank you for taking the time to read and the lovely feedback.   Yes I am positive for a better year ahead this year. 

Hope you are well. 

Best wishes

Michael 

 

User
Posted 08 May 2023 at 17:21
Hi Michael

I'm late onto your post but I thought it was wonderfully well written and really very moving - thank you. I'm probably too late for this but I hope you have, or had, a fantastic time in the Outer Hebrides. It is one of my two favourite destinations in the world (the other being Ardnamurchan). I was lucky enough to have two weeks there on a sabbatical about 10 years ago - just me, my Morgan, golf clubs and walking boots - as respite from caring for my late wife Lit (who sadly died last year 8 weeks before I was diagnosed). As you say in one of your answers - the beaches are just amazing.

I am lucky in that Abiraterone seems to be working well for me but none the less much of your post resonated with me - especially what people say to you - trying to be kind but coming out with some classic howlers.

Wishing you well in your next steps with treatment.

Kind regards

Ian

PS I've been blogging about my experience on LinkedIn to raise the profile amongst my contacts.

User
Posted 26 Jan 2024 at 19:10

Hey Michael,

Just thought id drop in again in what I think, is easily one of the greatest posts to have been written on here in my 2 year journey with this thing.

I hope you are more than well my man.

Best,

Jamie.

User
Posted 26 Jan 2024 at 21:25

Hear hear to that!

User
Posted 26 Jan 2024 at 23:02

One of the bravest and most moving things I've ever read. 

User
Posted 27 Jan 2024 at 01:25

Hi Michael,

Your post whilst heartbreaking, is very inspiring indeed. You certainly brought tears to my eyes. Its so easy to gloss over the impact of this, but in your own way that hit so many levels of life.

My demon is not as advanced, but 7 months AS on from diagnosis, it does eat away psychologically. It feels like I am walking round with a volcano awaiting to erupt.

My first instinct is to shield and protect those around me from this, but when serious health concerns inevitably lead to re-assessment of life and longevity, your loved ones do notice those subtle signs of change. Sure LPAs and Wills are sharp edged necessities, but the little things like me writing a burgeoning novel (sort of secretly late at night) on how to maintain the house and take over all the duties we take for granted. My pathetic not so convincing efforts to introduce family members to what I might do or contacts I have. The changing of the guard almost in case the worst happens. 

Above all we must make the most of life in the best way possible, because it does go on. 

I truly wish you and your family the best for the years ahead. Take care, Mark.

User
Posted 27 Jan 2024 at 02:54
Sadly, I don't think Michael is with us anymore. He was on palliative care in June 2023 and hasn't logged in since July 2023.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 27 Jan 2024 at 07:25

Originally Posted by: Online Community Member
Sadly, I don't think Michael is with us anymore. 

I read his bio, which is equally heartbreaking, and thought that might be the case. 😞

User
Posted 27 Jan 2024 at 07:38

Hi All, Michael became a friend through this forum and we PM'd quite often. Sadly he lost his battle in July 2023, confirmed by his lovely wife. He had a huge positive impact on me and taught me how to get through this journey whilst smelling the roses along the way. An amazing guy, who I wish I had met in person. Rest in peace Michael, your legacy lives on through this post and i am sure in many other ways. David

Edited by member 27 Jan 2024 at 07:39  | Reason: Not specified

User
Posted 27 Jan 2024 at 09:06

Thank you David.

Im just a little bit heartbroken at that.

Rest in peace Michael. Bless your soul.

 

Jamie.

User
Posted 27 Jan 2024 at 11:03

Very sad to hear about Michael we roughly started our journey together and had a very similar diagnosis and we're both the same age,and I must admit we did pm for some time but did lose contact some months ago,I thought something wasn't right but still shocked to here.

RIP Michael 

User
Posted 27 Jan 2024 at 20:47

That's so very very sad.

Michael, your spirit most surely still reaches us. RIP.

User
Posted 28 Jan 2024 at 09:42

How very sad this has happened and also that we didn’t know about it until now.

RIP Michael.

Derek

User
Posted 17 Feb 2025 at 22:31

So yesterday morning, I , with my now 10 month old border collie called Moss. Walked the length of Luskentyre beach.

Its been on my to do list thanks to you Michael.

Done..

Jamie and Moss. x

Edited by member 17 Feb 2025 at 22:38  | Reason: Not specified

User
Posted 06 Jun 2025 at 14:05

Well done Jamie. I am sure Michael would have been happy to hear that you did it. In the unlikely event that Michael´s wife Moira (I think) is still getting the alerts for this message stream, would you please reach out to me. I would like to publish in some way Michael´s advice that he generously posted after his first year after diagnosis. I have used AI to turn that post into "Michael´s Tips and Rules for living with Prostate Cancer" and I have a feeling Prostate Cancer UK might like to turn it into a leaflet that could help many other men like Michael helped me. David

User
Posted 06 Jun 2025 at 14:08
Michael´s original post is above if you scroll lots and here is what Chat GPT did with it (it looks much better in Word, but you will get the idea!)

Michael’s Advice: Tips & Rules for Living with Prostate Cancer

________________________________________

1. Understand That Prostate Cancer Is Not One Disease

Prostate cancer is not homogenous. There are many types, stages, and treatment paths. Some men live long, full lives with a curable, slow-growing form. Others, like me, face a more aggressive version. If you have the latter, be prepared: people may not grasp the seriousness. This can be frustrating - especially with friends, family, work, or insurance providers. Seek support from your medical team to help navigate these conversations.

________________________________________

2. Learn the Art of Waiting—Without Pausing Life

Living with cancer means living in a constant cycle of waiting for test results, scans, and appointments. But while you're waiting, time is still passing. Don’t press pause on life. Find ways to live meaningfully in the in-between moments. Don’t let cancer steal more time than it already has.

________________________________________

3. Your Diagnosis Affects Others, Too

Even if you're surrounded by love and support, remember—your loved ones are also carrying a heavy emotional load. They don’t have your firsthand experience; they rely on your updates and your honesty. Try to be real with them, even if it means using humour to soften the blow. Lean on them, but also be mindful of their need for support.

________________________________________

4. Accept - But Don’t Surrender

At first, I resisted slowing down. I thought accepting fatigue or pain was giving in. But acceptance doesn’t mean defeat - it means conserving energy for the right moments. Rest when you need to. Save your strength to enjoy life. That’s not giving in. That’s fighting smart.

________________________________________

5. Focus on What Truly Matters

A cancer diagnosis changes your perspective overnight. Suddenly, all the things that used to consume your energy - work stress, minor annoyances - fall away. It becomes clear that very few things truly matter. Focus your time and energy on those.

________________________________________

6. Stop Doom-Scrolling

Googling your prognosis rarely leads anywhere good. Online statistics don’t know you, your strength, or your support system. It’s natural to search, but try to limit it. Talk to your doctors. Stay informed, but don’t let the internet steal your peace of mind.

________________________________________

7. Let Cancer Open Unexpected Doors

Yes, there can be positives. I’ve made friends I never would have met otherwise. I’ve had to leave work, which, surprisingly, created space for new experiences and meaningful moments. Cancer changes everything, but not all change is bad. Stay open to the good that might come from it.

________________________________________

8. Hold Onto Hope and Make Plans

Even with advanced cancer, I still make plans - weekends with friends, time with family, and trips to recharge. These plans give life meaning. Keep looking forward, even if the future is uncertain.

________________________________________

9. You’re Not Alone

Whether you're newly diagnosed or years into the journey, know this: you’re part of a community. Talk to people. Stay informed. Be kind to yourself. And don’t panic, you will find your way.

________________________________________

10. Everyone’s Path Is Different

These are my learnings. Yours may be different. And that’s okay. The path is deeply personal, but we learn from each other. Share your story when you’re ready, and listen, someone else may need to hear it.

________________________________________

Michael’s Final Words

“For those on a curative pathway, please stay cancer-free - I send all my positivity.

For those not, let’s hang on for as long as possible.

And for those just joining this club, don’t panic. Stay informed and keep talking to those closest to you. You will prevail.”

User
Posted 07 Jun 2025 at 09:33

How true all those comments are.

Thanks for putting them back online Kerm63 and keeping Michael thread active 

Regards Phil 

User
Posted 07 Jun 2025 at 21:09

I echo your words exactly Phil and Bless Michael and also my Allan who left us 6 months ago after a fight. 

Melissa x

Mrs MAS

 
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