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Confused by diagnosis

User
Posted 04 Jul 2024 at 23:45

Cheers Adrian. Yes, I think I’ll get the treatment out of the way and then decide what to do. I was categorically told when they “downgraded” my diagnosis, that I had nothing to worry about for a few years at least, and should go on AS.

I’m now told that they were wrong with their assessment when downgrading, and also that any presence of Cribriform automatically scores as a 4 at best, so it could never have been 3+3=6. Either someone didn’t read the report properly, or they are incompetent.

The only thing I don’t know now, is whether the first MRI didn’t pick up the size of the tumour, which I find unlikely as it is apparently of significant size, or whether it has grown that much in a year. If the latter, then it is clearly quite aggressive.

User
Posted 08 Jul 2024 at 19:45

Best Wishes Ian.

If you want to chat call me

Keith

 
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