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Lymph Nodes- is there any point

User
Posted 26 Dec 2023 at 14:25

Reading don't have one either. They send patients to Oxford or Mount Vernon for PET scans.

However, hospitals without their own PET scanner offer far fewer PET scans to their patients. I had assumed this might down to cost, but an oncologist said to me it's also familiarity - oncologists in centres without PET scanners are less experienced in using them, often don't realise how useful they are (some have even been skeptical), and how often they cause in changes to treatment which improve outcomes.

There is a big shortage of PET scanning capacity though. This is causing a waiting period which is itself unsuitable for some patients, resulting in treatment having to go ahead without waiting for a scan.

User
Posted 26 Dec 2023 at 15:15
Following RP and RT ten years ago. They have detected a 4mm lesion in a pelvic lymph node with a PSMA scan. They did not discover anything else apart from some OA. The prostate bed was clear. Does this mean the PCa has been lurking in that lymph node for years. I am now waiting for for an appointment in January to see if SABr treatment is possible/appropriate

Thanks

Bri

User
Posted 26 Dec 2023 at 15:58

Originally Posted by: Online Community Member
Following RP and RT ten years ago. They have detected a 4mm lesion in a pelvic lymph node with a PSMA scan. They did not discover anything else apart from some OA. The prostate bed was clear. Does this mean the PCa has been lurking in that lymph node for years. I am now waiting for for an appointment in January to see if SABr treatment is possible/appropriate

Thanks
Bri

You sound similar to dh with it in a lymph node. Though dh has it in more than one lymph node. However it is 9 years from original treatment and the original treatment worked as nothing found in the prostate. It’s amazing it can sit in the lymph nodes all that time without putting out psa (dh’s psa was 0.01 for almost 5 years) As I said above I don’t get how it got into nodes further up into the pelvis, but none in the nodes close to the prostate. The consultant did say they must’ve been there all along. In that case….its annoying they don’t just do a psma at initial diagnosis. 

User
Posted 15 Mar 2024 at 13:58

I was diagnosed with Prostate cancer in February 2022, T3B N1 M0. Gleason 8,PSA 252.

 

I’ve had 6 chemotherapy sessions and 37 radiotherapy sessions. I’m also on hormone therapy.

 

First PSA test after completion of treatment 2.1

 

Second test four months later 0.5

 

Third test 0.2

 

My fourth test is in March

 

The March results have just come in at less than 0.1 which is quite a relief.

 

The real issue is what happens to the PSA in years time when I come off ADT.

 

Given what I presented with,I’m not holding out much hope but at least I am okay for now.

 

I thought I would post an update, if it’s of any interest to anyone.

 

User
Posted 15 Mar 2024 at 17:53

Andy is one incredibly smart and helpful person along with a few others on here that have helped me and many others in dark times carry on with this disease i personally can't thank you all enough for all your help and support you know who you all are thanks again garry 👍

 
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