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Post RARP PSA level

User
Posted 10 Jun 2024 at 11:19

Originally Posted by: Online Community Member
Hi Adrian.  Yes, the PSMA scan came back to show that the cancerous cells hadn’t spread but it DID indicate cells in the margin that wasn’t able to be removed. There had been a problem in the op due to adhesion of the gland onto surrounding tissue. 

Thanks for the update mate. Great news about the scan and it looks like you were unlucky with the op. I'm pleased that they think your new treatment will sort the job. You seem to be coping very well. 👍

 

User
Posted 21 Jun 2024 at 01:55

Hi Adrian.   I went for the pre RT planning scan last week as arranged but they couldn’t do the scan as I had problems getting the correct amount of urine in my bladder for the scan to be accurate so after 2 unsuccessful attempts I was sent home to return today.  This time it went ok and the scan was completed.  I will be sent an appointment in the next week or so to start RT in  3-4 weeks.  I also started the hormone jabs today so everything is moving ahead.  How are you getting on? 

UPDATE

Planning scan successfully completed 20/6/24.   RT due to start Wednesday 10/7/24.  20 sessions. I’ve had 1 x hormone jab, next one due September.

Further update.

 20 Sessions of RT completed 7/8/24 and I have an appointment to go back and see the oncology consultant in about a months time.   The 20 sessions went ok and I didn’t have any side effects till about half way through.  I felt a bit rough a couple of times and started to have tummy problems including “wet wind” which is unpleasant to say the least!  Everything I’ve been told and what I’ve read told me that the side effects get worse in the first 2 weeks after the procedures finish before they start to get better so I’m looking forward to that!. I had a PSA test when I was nearly at the end of the sessions and it came back as 1.56. Less than half of what it was before I started!!  

Edited by member 15 Aug 2024 at 02:24  | Reason: Not specified

User
Posted 21 Jun 2024 at 08:47

Hello David.

I really feel for you mate. It's only been 4 months since your prostatectomy. It's no wonder that you were struggling to have the right amount of urine. 4 months post op I had very little bladder control. 

I'm pleased that you managed to get the scan completed at the second attempt and that your RT treatment is scheduled. I hope the rest of your treatment goes well and that you make a full and speedy recovery.

I'm not so bad thanks. Much better than I was this time last year.

User
Posted 21 Jun 2024 at 09:06

Sapper, It might be worth doing a few practice runs at home to get your bladder capacity right, although it may change as treatment progresses. My appointment times were a bit all over the place. I kept hydrated though the whole process. I would drink water on the way to hospital check the appointment was on time, empty the bladder and then drink the 500/600 mls of water. 

Hope all goes well for you.

Thanks Chris.

User
Posted 27 Aug 2024 at 09:13

Hi Sapper.

I was going to pm you to see how your salvage treatment was doing but realised that you have put some late edits in your last post (21/06) to update us.

I'm bumping the thread so others, who missed your updates, can view your progress.

I wish you well mate.

Edited by member 27 Aug 2024 at 09:18  | Reason: Additional text

 
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