I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<123

Very worried not sleeping

Email this conversation Print this conversation
User
Posted 15 Dec 2024 at 10:49

Morning all, Was definitely favouring HT/RT treatment but having serious concerns about my overactive bladder not being able to hold the required water in,I'm taking Mirabegron which relaxes the bladder muscles but don't think it will be enough on its own,has anyone had the same overactive bladder issues and been given help ie medication from the oncologist team ?

 

I'll be doing the muscle exercises have been practicing drinking a pint of water twice a day and seeing how long I can not wee for ,but really worried for 5 days a week for 4 weeks my bladder will let me down,plus I have to give a answer on Tuesday about what treatment I'm choosing was supposed to be on the 31st but got brought forward can I ask to make my decision on the 31st ?

 

Thanks again 

 

Peter 

User
Posted 15 Dec 2024 at 11:21

I had a similar situation as I was already on Tamulosin for BPH and prostate size of 66cc. Just over 3 weeks ago I completed 20 sessions of Radiotherapy. The regime at my hospital (Rosemere Cancer Foundation at Royal Preston Hospital) was to have a completely empty bladder before each session. There seems to be big discrepancies between different NHS Trusts. After some urinary urgency (but thankfully no accidents), things has started to settle down. I'm spreading my 2 litres of fluids through the day and having nothing after 6pm. Recently I've had a few nights of only being up twice a night (average for my age group). Worth having a discussion with your Radiotherapy Provider about your concerns and potential alternative approaches. Good luck, you'll get there.

User
Posted 15 Dec 2024 at 11:35

Hi 

I also have a enlarged prostate which doesn't help with the weeing, so you didn't need to have a full bladder for your radiotherapy  ?,I've been told by the oncologist that I'll need to drink a certain amount of water every day for 20 day treatment, hopefully the Radiotherapy prostate or oncologist team and give me something fingers crossed. Glad your urinary urgency is settling down

Best wishes 

Peter

User
Posted 15 Dec 2024 at 11:40

That's correct. Completely empty bladder before each session. Even if your team has a different approach, I don't think I was on the machine for longer than 10 minutes for any of the sessions. Also I spread the 2 litres of fluids throughout the whole day, including decaff tea, decaff coffee and even milk on cereals or soup counts towards your daily total.

User
Posted 15 Dec 2024 at 11:46

I'd so wish for that treatment, so the two litres a day is recommended during your treatment days ? Or when your treatment has finished  ?

 

User
Posted 15 Dec 2024 at 13:02

I've been doing it for almost 6 months since I started Hormone Treatment.

User
Posted 15 Dec 2024 at 13:58

Ok if I go for the Radiotherapy I'll be on the hormone treatment pretty quickly I'll definitely take your advice, thanks 

User
Posted 25 Jan 2025 at 11:55

Hi all 

Had my first prostrap injection Wednesday and still on the hormone tablets, I have my friends 50th birthday party tonight and was wondering if having 4 pints of Guinness maximum will be OK or should I stick to soft drinks ? 

Thanks 

Peter 

User
Posted 25 Jan 2025 at 12:44

Hi Pete.

Go Guinness! As long as you're not driving.😁

I had surgery but never let cancer spoil a pint or two.🍻

Edited by member 25 Jan 2025 at 12:46  | Reason: Additional text

User
Posted 25 Jan 2025 at 13:06

Hi Adrian 

Thanks Adrian for that,I'm sure 4 pints won't hurt have read other guys have had a bad  reaction as in dizziness from alcohol so 4 max for me tonight  

cheers 

Peter

User
Posted 25 Jan 2025 at 13:20

Originally Posted by: Online Community Member
 have read other guys have had a bad  reaction as in dizziness from alcohol

I've had that hundreds of times, but it had nowt to do with prostap. 😄

User
Posted 25 Jan 2025 at 13:34

Have tried Guinness Zero? You can even mix and match it with the real stuff to reduce your alcohol intake.

User
Posted 25 Jan 2025 at 13:41

Hi Never tried Guinness zero very good idea though 👍

Thanks 

Peter 

User
Posted 25 Jan 2025 at 13:42

😅🤣😂👍

User
Posted 25 Jan 2025 at 13:57

Yeah, Guinness zero is good. They've spent millions on it to make it taste just the same as the real stuff. It even gives you a hangover if you have enough.😄

Edited by member 25 Jan 2025 at 13:58  | Reason: Spelling

User
Posted 25 Jan 2025 at 14:06

Never tried it so could be my first tonight ,I'll let you  my opinion if my local has it 

User
Posted 27 Jan 2025 at 23:17

Not that far behind you. Was diagnosed on 9th January. I've got meeting in 2 weeks with surgeons and oncologist. Sleep is a mega problem, when it's night and everyone is asleep, mind racing, what if this and what if that. I'm gleason 3+4 PSA 7.21. Cancer localised and within prostate. So far the guidance has been mainly for surgery. I'm in 2 minds currently. I'm 57

 

User
Posted 28 Jan 2025 at 12:11

Hi Arthur 

Yeah sounds very similar waiting for the PET scan results was torture woke up every night around 3am mind racing, once the results came back ok I was sleeping ok.

My partner and I want through all the pros and cons with treament I was between a rock and a hard place because I have a bad overactive bladder so surgery possibly could of made my bladder worse so we went for the hormone radiotherapy treament,the oncologist reassured me they had medication to help with my bladder while having to have a full bladder but found out Wednesday from the prostate cancer nurse when having my first injection I'm on the medication already which isn't great as it isn't helping  

A prostate nurse got me a prostate buddy to ring me who has similar symptoms with his bladder to give me some tips of how he got through radiotherapy without wanting to wee during treatment it turned out he had his radiotherapy with a empty bladder 🙄 which a few guys on the forums have also had 

Been very lucky with no side effects as yet but bound to get one or two

Best wishes 

Peter

Edited by member 28 Jan 2025 at 12:16  | Reason: Not specified

 
Forum Jump  
<123
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK